angelina childhood dementia

June 27, 2022

Angelina had no symptoms until she was 14 years old. Angelina Jolies father said that Angelinas mental illness was long-term especially after her marriage ended.

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Lafora disease is a terminal neurological disease characterised by progressive myoclonus epilepsy tonic-clonic seizures cognitive decline childhood dementia and ataxia just to highlight a few.

. Theres no cure and not enough research. Teenage girl Angelina has been diagnosed with a terminal illness so rare its the only known case in her country. Prior to this Angelina was a typically developing teen attending school full time with no signs or symptoms previously.

It just didnt make sense to us. Angelina pictured with mum Niki as a baby was diagnosed with childhood dementia at age 14. Angelina Lati 17 Isla Donnell 12 Jude Donnell 10 and Greta Gowans 6 all have childhood dementia.

Then she began dropping glasses while setting the dining table and falling. It was September 2018 when Angelina experienced her first seizure -. Angelina was diagnosed with childhood dementia caused by a rare genetic disorder called Lafora disease.

Niemann-Pick disease type C NPC Sanfilippo syndrome or mucopolysaccharidosis type III MPS III Both diseases are whats known as lysosomal storage. They will be Climbing For Angelina to raise awareness of Lafora Disease and Childhood Dementia. At 17 Angelina Lati should be preparing for her year 12 exams.

Today she is unable to attend school and suffers from significant cognitive decline. Sign our petition asking the Australian government to direct more funding and action to childhood dementia. But instead shes facing a far greater test she suffers from childhood dementia.

Angelina and her family share her story to help people understand what childhood dementia can look like for a young person. Researchers know Angelinas childhood dementia is caused by a mutation in one of two genes that control the way cells store glycogen a form of sugar. In addition her father also said that Angelinas illness can be traced back to her childhood because her fathers disloyalty to marriage led to divorce and then Julie and her mother lived.

Learn more and donate here. A lengthy hospital stay followed along with extensive genetic testing which finally confirmed Angelinas shocking diagnosis of Lafora Disease which is one of the 70 types of childhood dementia. Their families are pleading for awareness and clinical research into the disease.

Symptoms include seizures muscle spasms difficulty walking behavioural changes confusion and cognitive decline. A video featuring 16-year-old Angelina has helped generate a greater understanding of the impacts of childhood dementia and the need for action. Angelina Jolie also said that sometimes she would have self-harm.

Angelina Lati lived a normal life that was until three years ago when she experienced her first seizure. Childhood dementia affects as many children as cystic fibrosis. A family of Greek Cypriots living in Loughton Essex will be Climbing For Angelina to raise awareness of Lafora Disease and Childhood Dementia.

There are an estimated 700000 1 children and young people worldwide suffering from childhood dementia. Angelinas story gives devastating insight into the impact of childhood dementia. Dementia is not just an old persons disease and there are Aussie kids who are struggling with childhood dementia too.

Angelina Lati lived a normal life until she was 14 years old. She was eventually diagnosed with Batten disease - a rare form of childhood dementia which also robs children of their eyesight speech and ability to move. It is one of 70 disorders that cause dementia in children but because theyre regarded as individual and extremely rare diseases the healthcare support and clinical research is grossly inadequate.

Three years ago she experienced her first seizure which was diagnosed as Lafora Disease 9 months later. Currently there are only 70 registered patients globally with possibly many more who have been misdiagnosed. A ticking time bomb.

Teenage girl is one of only 70 in world with rare terminal illness Complete disbelief. These are the words of Niki Markou Angelinas mum about. Lafora Disease is a terminal neurological disease characterised by progressive myoclonus epilepsy tonic-clonic seizures and childhood dementia.

Childhood Alzheimers can refer to.

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